So this is something that I've been working on in my own life, and I thought this was a beautiful way to do it. I was impressed when I heard President Eyring message the first time.
Friday, May 22, 2009
What a beautiful day!!
So this is something that I've been working on in my own life, and I thought this was a beautiful way to do it. I was impressed when I heard President Eyring message the first time.
Monday, May 11, 2009
House of visitors and WSU Graduation Weekend
Monday, May 4, 2009
Pompe's disease
Well I had two infusion patients today that had enzyme replacements. One patient has Pompe's disease and has know since about 1997. This patient comes in every 2 weeks for about 5 hours of an infusion of an enzyme replacement therapy that is thought(still in research stages) to at least decrease the difficulties with Pompe's. (People with disease, have difficulty breathing and their muscle deteriorate and so it make them difficult to move around from place to place and some even have electric wheelchairs, if the disease isn't caught and treated.) But the patient still feels like his health is declining slightly, but doesn't dare stop the study because of how fast the decline
would be if he did. I didn't mention that the infusions cost about per infusion $30,000. And they get infused every 2 weeks, $60,000 a month, over $720,000 a year. Can you imagine!!! Crazy and the study doesn't pay for those infusion either!! Thank heaven for insurance!!
Well this patient helped me to learn all about this disease process, cause I haven't seen anyone with it and haven't studied about it since nursing school, but here at Pullman Regional, we are willing to participate with the study of the drug and the paperwork involved. People from several hours away will travel here to get the infusion, cause more local hospitals won't participate in the study and do the necessary work.
But it was interesting to hear from the patient about how there are lots of disease processes that have similar signs and symptoms that Pompe's does, So any of the muscular dystrophies, or even MS, have been found to be misdiagnosis at first. He even told me that infants that die of SIDS may have Pompe's too, cause of the difficulty breathing symptoms. Amazing! I had no idea, but after talking with the person, it make perfect possible sense. Not that I'm 100% convinced that all of these disease processes are really Pompe's. And all it takes to screen is a simple blood test. Now my friend Jade (HEY!!) just had an interesting post about what can possibly happen with blood draws from an experience with her husband. Sorry Ben!! But it's something to think about, and he asked me if I was going to have my baby tested. Gave me lots to think about, and for sure I'm going to ask the Dr. about it on Thursday!!
Monday, April 27, 2009
Coming to Grips!
Wednesday, April 22, 2009
Oh how embarrassing.
Sunday, April 19, 2009
30 weeks update & Stake Conference
So I've been reading the book Your Pregnancy & Birth, which the Dr. gave to us on the first visit to comfirm our pregnancy. Well it's been a good book. It's reminded me of all those things that I learned while I was in nursing school and so it's all coming back to me. But I was surprised at the feelings that came with it. I started to just think about how everything that has been for the last few years is going to change. Not only are we going to have a baby, but Chad is going to be in his Fourth year of Vet school. What was I thinking!! All of a sudden I'm not sure I am ready for that. AHHH! Has anyone else done that? I remember talking with my friend Brenda from work(HI!), she and her husband just had an adorable little boy this last year, and she told me how it does totally change your life to have a new baby, not only your entire body, but it changes your relationship with your spouse as well. But she also said she would have it any other way either. So it changes things in such a dramatic way, but for the better.
Yard pictures
Thursday, April 16, 2009
Labor predictions
Wednesday, April 15, 2009
Craft Fair, WSU Mom's weekends April 3-4th
Sunday, March 29, 2009
Family visits & Spring Break
It was fun to have my cousin Lindsay and her husband Tyler come stay with us. They're moving up to Moscow in the Fall/end of Summer, so Tyler can start classes at U of I.
Chad and I were busy trying to get things started for the craft fair that week, so we didn't get much time to spend with them....but we enjoyed there visit none the less. We also had tons to talk about as Lindsay and I's baby girls are due 1 day apart. I'm due on the 23rd of June and Lindsay on the 24th!! I realized the night before she was leaving that I hadn't even got a picture of us and our prego bellies. Hope you enjoy!
So not only did Tyler and Lindsay visit, but my parent's both came up for the weekend. It was so great to see them, and they were invaluable as they painted, sanded, and whatever else we could think of to help us with the craft fair. Funny thing is....I think they expressed that they had more fun this visit than any of the others. I guess they like to stay busy. We also rented Austraila from a Red Box.
http://www.youtube.com/watch?v=ekqaqYrz6zo
Here's a link if you want to watch a preview. Sorry the embedding code isn't working.
I don't know how many of you have seen this show, but I was surprised that I ended up liking it as much as I did. First off, our Projector/TV kept overheating, so we watched in about 5 increments, and second, it's cinematographer is the same as for Moulin Rouge. And his style is like no other, but the videoing was only crazy for the first little while. And Third it was 2 1/2 hours long and I was only expecting about 1 1/2 hours. But over all I really enjoyed the plot and the acting. Just wish I had know that I was sitting down for a 2 1/2 hr movie to begin with!!
I was sad to see my parents leave, but my Mom brought some things with her to give me that I thought was pretty neat. She brought several things that she was given when she had me. I have my blessing dress and several receiving blankets that I used as a baby.





